Got here around 9:15 a.m. Been making sure I’m not too late as I want to make sure I’m here when Doctor on call makes his rounds. Don told me earlier he had a temp of 104 – it’s probably a good thing I wasn’t here – they immediately gave him Tylenol. It had come down by the time I arrived – breakfast came and Don did want some cherry muffin – he made the comment he was hungry. Haven’t heard him say that in so long. He did have about half of it – which believe me was more than he’s had in quite awhile.
Dr. Fuchs came with his entourage of colleagues. He indicated he feels strongly that the problems Don is having right now is related to the transplant – okay what the heck does that mean?? I mean Don has said all along he feels the chemo drug he took Melphalan was contributing to a lot of his problems. IF this is the case how much longer?? No one seems to be able to answer that question for us and it’s getting quite frustrating to say the least. At this time Dr Fuchs indicated they would not be adding any additional antibiotics – I would imagine that’s because ALL tests have come back negative. It’s possible they might do a repeat CT scan tomorrow – goodness knows why – but maybe something will be there that didn’t show up the first time – I doubt it though.
Blood pressure and temp continued to be monitored throughout the day. Lunch time he had a few bites of turkey and mashed potatoes. Few bites is his limit but at least it’s something – oh and he had a cookie also.
Around 4:55 p.m. temp was up to 101.5 – blood pressure was also up. We had another Doctor come in to see Don – Dr. Schecter – I think we’ve seen him before. Due to rise in blood pressure he wanted it taken laying down, sitting and standing and because of the temp he wanted blood cultures done – they drew blood from the catheter and from his hand as well. Dr. Schecter ordered more fluids and Don was given Tylenol.
Temp was taken around 7:00 – it was down thank goodness. Taryn our nurse had said if it didn’t come down they would need to do ice packs under his arms so glad it did and hoping it doesn’t go back up. But this was short-lived – it’s 7:55 p.m. and temp is 100.6. Don’s nurse this evening is Ann King – a new face.
Don’s diarrhea subsided for 4 hours today – that’s the longest time in between it’s ever been. Nurse Ann is getting him some Imodium now. He will have to go to the bathroom though because of all the fluids they are giving him – it never ends it seems. They have also said he can have something to help him sleep.
I’ll be leaving here around 9-9:30 so I just pray he has a good night of sleeping and the temp doesn’t go up.
Keep the prayers coming – we need and appreciate them.
Until tomorrow……….
Love you all!
Don & Muffin
I wanted to add something but since Kristi had to post it won't let me. I forgot to put that Mark and Kristi came to see us today. They got to see their Dad and I know they were happy about that and of course I was thrilled to see them. Dr. B, Myeloma Specialist, didn't make it today but hopefully tomorrow. I left around 10 -hope Don gets some sleep tonight.
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